FTD is the most common cause of dementia in people under the age of 50. With this blog, I am hoping to offer information and insight into dealing with FTD, whether you have the disease, are a caregiver for someone who does or if you know or love someone who has the disease and want to learn more about it. Further information on FTD can be found at www.theaftd.org It is a common misconception that dementia is a condition exclusively of old age. The grieving begins long before physical death. If FTD is diagnosed early in the course of the disease, doctors can prescribe medications and help families prepare and cope with symptoms. Frontotemporal dementia (FTD) is a group of disorders that result from damage to the frontal and temporal lobes of the brain. Problem solving, personality and common sense are all affected, along with memory, language comprehension and hearing. All moderators are available to be contacted about any group issue or concern. FTD may be taking away my father, but I am gaining a great deal of respect for my mother for keeping her promise to … The NY Times recent article here is a pretty good read. The average time between diagnosis and death is between four and ten years. Tips for managing aggressive behaviour in FTD . Families need to care for their own well-being, while making sure that their loved one is treated with dignity and respect. Coping with FTD can be scary, frustrating, and embarrassing for the patient and family members. Posts that discuss sexuality as related to FTD are requested to be non-explicit. Added to the pain of dealing with an untreatable, incurable illness is the loss of person, insight, and empathy for others. The condition may last from three to 17 years before death, with an average duration of eight years after diagnosis. It is important, however, to understand that the behaviour exhibited by people with FTD is a result of the disease process in the brain as FTD … Putting One Foot In Front of the Other is author Nancy Carlson’s candid blog post about coping with her husband’s diagnosis of frontotemporal degeneration (FTD). The archives will be open to all members to read. And of course there are the articles about the spouses and children that are coping with the disease. So family members shouldn't take their loved one’s behaviors personally. I hope this blog helps you to understand. Fronto Temporal Lobe Degeneration - A different kind of dementia, most often called FTD. FTD is a form of early-onset dementia that affects the executive decision-making part of the brain. Frontotemporal dementia (FTD) is a type of dementia that happens because of damage to the frontal and temporal lobes of your brain. 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